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TRAINING LOG: Little Duncan

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Nathan Parker View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nathan Parker Quote  Post ReplyReply Direct Link To This Post Posted: 5/03/14 at 9:40am
Boom!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 5/03/14 at 4:15pm
Just got home from the after-party, and the great news is that Team Duncan made over $13,000 for the March of Dimes.  After all the straggler donations come in, it may add up to almost $15,000.  Boom indeed!

I made it all 1.2 miles and had a police escort the entire time!  It was a lot more difficult that I expected, but I managed it.  All the training and good energy that was sent, paid off.

More pictures and a celebration video to follow!  This one is about 100  yards from the finish line on rubber legs.




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Post Options Post Options   Thanks (0) Thanks(0)   Quote KiltBill Quote  Post ReplyReply Direct Link To This Post Posted: 5/03/14 at 9:17pm
Way to GO!!!
Remember Kay Cummings, Father of the Highland Games in the Southeast and my friend. Lets Go Run With The Big Dogs!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PaulEvans Quote  Post ReplyReply Direct Link To This Post Posted: 5/06/14 at 7:15pm
Late to the party, but great job on the fundraising and the finish!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote phatmiked Quote  Post ReplyReply Direct Link To This Post Posted: 5/06/14 at 8:49pm
Awesome   Clap
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 5/18/14 at 6:02pm
Update:

  • The Team Duncan total is officially in the books at just over $14000.  Whoo-hoo!
  • There has been more talk about putting me up for National Ambassador, so we are looking into that.
  • Mom has put in the second order on Team Duncan shirts, so those will be coming in soon.
  • Dad is working on a celebration video.  He's just old and slow.
  • There is a one mile charity race coming up on June 14th (the same day as Day 1 of the Blairsville Games) that I considering entering.  I looks like an ideal next event.
  • Iron Dawn is killing me with step-ups... but that is her job.
  • I turned seven years old today.  Every day is a gift.
  • Lastly, if you have spare mojo, please send it tomorrow afternoon.  Mom and Dad are going into a very hostile school system meeting to fight for my rights to be included and to have appropriate adaptations provided.  We already know how it will end, but not how painful it might be.






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Post Options Post Options   Thanks (0) Thanks(0)   Quote dWood Quote  Post ReplyReply Direct Link To This Post Posted: 5/18/14 at 9:13pm
Haapy birthday Duncan...from dwood(#1 NY fan)
JUST BRING IT /

SPEED KILLS..BUT STRENGTH PUNISHES
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rogerws76 Quote  Post ReplyReply Direct Link To This Post Posted: 5/19/14 at 2:11am
La breith sona dhut LD!!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote KiltBill Quote  Post ReplyReply Direct Link To This Post Posted: 5/19/14 at 5:41am
Happy Birthday!!!!
Remember Kay Cummings, Father of the Highland Games in the Southeast and my friend. Lets Go Run With The Big Dogs!
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Post Options Post Options   Thanks (1) Thanks(1)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 8:38am
August 2014

Successfully won a significant battle with the local school system for inclusion and educational rights.  I am at or above grade level in all subjects and will continue to fight for fair testing.

PR


Edited by TomLawrence - 3/04/15 at 9:37am
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Post Options Post Options   Thanks (1) Thanks(1)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 8:40am
September 2014

ConnectAbility Road Race




Got my own cheerleaders!





Edited by TomLawrence - 3/04/15 at 9:37am
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Post Options Post Options   Thanks (1) Thanks(1)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 8:42am
October 2014

Seven Bridges Marathon in Chattanooga TN -- The Destroyer and I did the 1K race.






Edited by TomLawrence - 3/04/15 at 9:37am
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Post Options Post Options   Thanks (1) Thanks(1)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 9:00am
November 2014

Distance training on Astroturf -- much harder to walk.




Edited by TomLawrence - 3/04/15 at 9:37am
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Post Options Post Options   Thanks (1) Thanks(1)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 9:18am
January 2015

Distance training - 1/2 mile paved course in the wind


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Post Options Post Options   Thanks (1) Thanks(1)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 9:36am
March of Dimes is coming on May 2 and there will be training videos and information posted here very soon.

However there is bigger news -- after having passed through a lengthy screening process these last couple of months, I will be traveling to St. Louis Children's Hospital on May 10 to have selective dorsal rhizotomy (SDR) surgery on May 12.  There is a high probability that it will permanently fix a lot of my complications from cerebral palsy.  That should mean:  no more Botox injections in my leg muscles, no more permanent pain, reduced likelihood of future tendon lengthening or other orthopedic surgeries, and maybe being able to move out of my walker to crutches... or beyond.   There is a long list of other potential related benefits but they are unpredictable.  Rehab is intense, but my PTs are already lined up and have a "just say when" attitude. 

March of Dimes training is now pre-hab.  Distance training, belt squats, and side stepping with a hip circle... bring it.

http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr
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Post Options Post Options   Thanks (0) Thanks(0)   Quote grasshopper Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 10:17am
Definition of STRENGTH.  Keep up the updates Tom!
"Breathe deeply. Refuse to be weak. Refuse to be sick. Refuse to die. Think strong and you will be." -The Mighty Atom (Yoselle Greenstein)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rob meulenberg Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 11:10am
Awesome Tom. Best thing I've read in a few days. When we all wine about our own issues, we must remember there are people like LD who are dealing with serious stuff and doing it like a champion.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BrittneyBoswell Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 1:18pm
Could not be more excited and proud for you guys! What a champion he is. 
Highland Games - The drama is so high, because the stakes are so low.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote C. Smith Quote  Post ReplyReply Direct Link To This Post Posted: 3/04/15 at 6:34pm
Awesome.  Just awesome.  
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jsully Quote  Post ReplyReply Direct Link To This Post Posted: 3/05/15 at 8:48am
Originally posted by TomLawrence TomLawrence wrote:

I will be traveling to St. Louis Children's Hospital on May 10 to have selective dorsal rhizotomy (SDR) surgery on May 12.  There is a high probability that it will permanently fix a lot of my complications from cerebral palsy.  That should mean:  no more Botox injections in my leg muscles, no more permanent pain, reduced likelihood of future tendon lengthening or other orthopedic surgeries, and maybe being able to move out of my walker to crutches... or beyond.   There is a long list of other potential related benefits but they are unpredictable.  Rehab is intense, but my PTs are already lined up and have a "just say when" attitude. 

http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr


God is good, man. You are blessed.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 3/05/15 at 7:42pm
Thanks everybody.  I have passed on your support to Duncan.  I'll keep y'all updated.
Aim high. Stay hungry.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SeanUrq Quote  Post ReplyReply Direct Link To This Post Posted: 3/08/15 at 3:48pm
That's wonderful news!!!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 4/16/15 at 6:50am
It hit me this morning that the March for Babies is only a little over two weeks away.  Duncan has been training, but I have not managed to make a video for two reasons:
1) unfortunately we are back into legal wrangling with his school system, which has taken a lot of time.
2) he has had to abstain from Botox injections in his legs to prepare for the surgery the following week, so normal distance training has not been possible.

All to say, we are scaling back the MoD campaign this year in preparation for the bigger events of the SDR surgery and a transition to a new school.  If anyone does still want to support the cause, the link is:
http://www.marchforbabies.org/SupportDuncan

The March for Babies date is May 2, and I will keep y'all updated as we head to St. Louis on May 10 for the actual surgery on May 12.

Tom

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 4/29/15 at 12:21pm
Successful Individualized Education Program meeting at the school yesterday without attorneys involved = PR.

Little D is past his Botox injection window because the surgery is coming up, so the spasticity in his legs is slowing him down; however, his strength is up so he's still walking in spite of it.  March for Babies is Saturday, and he will walk some.  It just won't be the full distance this year. 

Also of note, is that the team should hit its goal for the year, and that will push Duncan's 'lifetime' total over $50k.  That's what we call giving back!

Tom
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nathan Parker Quote  Post ReplyReply Direct Link To This Post Posted: 4/29/15 at 12:54pm
Woohoo! Great job Duncan!
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"Breathe deeply. Refuse to be weak. Refuse to be sick. Refuse to die. Think strong and you will be." -The Mighty Atom (Yoselle Greenstein)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Silverback Quote  Post ReplyReply Direct Link To This Post Posted: 4/30/15 at 8:38am
Great stuff here, thank you
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 5/03/15 at 3:42pm
Saturday 5/2/15

Appalachian Foothills March for Babies

Duncan walked about a 1/4 mile around the park (uneven terrain training, like walking with a slosh pipe), mostly just visiting folks and looking at the big diesel train that runs on the scenic railway.  The local police that escorted him last year were all happy to see him, so he was handing out high-fives.

For the March itself we did it yoda-hike style, so we were able to keep up with the other marchers and talk to the local business folk who came out to watch and cheer.  Over all it was a lot of fun.

Now the money - we completely missed our $5k goal...  and topped out a little over $10k!  Once all the checks get checked in, etc. Duncan's lifetime donation total to the MoD will be just over $55k.  We figured that is about what it would cost to buy two of the high-end "giraffe bed" incubator beds that they use in neonatal intensive care units.  Considering the highest need babies use those for about 3 months each, that maths out to 8 babies served per year and maybe at least 80 babies served for the life of the equipment.  That's real, right there.  Love it.

Thank you to all who donated cash and encouragement. 

One week until we travel to St.  Louis for the SDR surgery.  Counting down.


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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nathan Parker Quote  Post ReplyReply Direct Link To This Post Posted: 5/04/15 at 9:20am
Now that's making an impact! Great job!!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TomLawrence Quote  Post ReplyReply Direct Link To This Post Posted: 5/26/15 at 8:47pm
Duncan is getting stronger every day and making progress on the prescribed stretches and strength building exercises.  He is also getting professional PT four times a week from Iron Dawn and Cowgirl Nicki.

He's back to being able to bear some weight on his legs so the PTs requested a new set of parallel bars.  NMB Therapy Devices was happy to provide the parallel bars that Gotham deserves.








And because the purple PVC cleaner on the white fittings inspired a little mayhem, we added some green:





Tom



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